A Break from the Regular Programming

We are back from a great trip in Florida visiting my folks, as well as Mickey and Minnie Mouse, and I must post a vacation wrap-up with adorable photos. I have had that on my "to-do" list since we returned, but I have been distracted by the task of getting back into my master's capstone (thesis) work and slowly beating back the piles of suitcase laundry and general clutter we left in our wake when we flew off for our trip. I have also been distracted by my health, which brings me to my non-parenting related post today.

Warning: this is not a happy, funny post. This is the real stuff. Okay, warning over.

I had a health scare a few months ago, one that required some tests to rule out what I would call "big nasties," like cancer. The tests gave me the all-clear for "the C which must not be named," and I was relieved. The bad news---the symptoms that brought about this scare didn't dissipate just because we knew I had no acute emergency. Funny how that is---positive test results, while reassuring, just don't make illness go away. That meant that I would have to meet with specialists to further investigate, and because "prompt" in our health system means 6-8 weeks, those appointments were first available this week.

I began my morning today with an examination from an endocrinologist at the University of Chicago Hospital. He was a nice man, a smart man, a competent man, and a compassionate man. I have seen four endocrinologists throughout my lifetime, and I have to say, they are some of the kindest doctors you'll ever meet. I know this is a generalization based entirely upon my personal exposure to physicians, but I believe that there is something about this specialty that attracts thoughtful problem-solvers---individuals who are committed to deal with chronic disease and the patient behaviors that affect them on a day-to-day basis. He was just one of these doctors.

With all that going for him, though, I left my appointment feeling crest-fallen, sullen, introspective, and somewhat crushed. You wouldn't have known it by looking at me, and you certainly wouldn't have picked up on it talking to me---my outwardly cheerful, giggly persona often persists even in my dark moments, a quality I'm not sure is a blessing or a curse.

Obviously, the doc needs to wait for test results to come back, but in truth, the examination seemed to give me the "you are basically healthy" sign-off, because no specific, specialized diagnosis popped forward as plausible. I don't feel healthy, though. The reality is this---even if we can't figure out a boutique diagnosis that neatly explains all of my new symptoms, and even if we can't assign a label and a drug and a special diet and a course of action, and even if my blood pressure is fantastic (and it is) and I come out with perfect lipids and hormone levels that gals everywhere would envy, I know and the doc knows and everyone that knows and loves me knows, I am suffering from a disease. A diagnosable, very real, very unpleasant disease. That disease is obesity, and in my experience, it is a nightmare.

I began gaining weight, just a little bit at first, around the age of 11. I have steadily gained weight since, with some periods of weight gain more fast and furious. The worst of these has been since the birth of my daughter---I went into my pregnancy overweight but in fantastic shape, and now, 3 and 1/2 years later, I am 65 pounds heavier.

That's right, 65 pounds. On an already overweight frame, that is a lot of weight, very quickly added. Considering the fact that I barely gained 25 during my very healthy pregnancy, the post-partum pounds feel even more oppressive.

In my experience, a person, when acclimated to being overweight, can add pounds steadily without being overly burdened...for awhile. I got used to not being able to shop easily, to not be able to comfortably wear certain types of clothes (i.e. dresses, button-down shirts, etc.), to look for the most comfortable place to sit in a room because not all chairs (especially those with armrests) are comfortable on my hips, to expect to outgrow clothes over time, despite my best efforts to control my diet and exercise regime---things that I know most people who haven't had a serious weight problem never consider, but that become the daily pattern for the obese. At some point within the last year, though, I gained enough weight that I hit a tipping point (thanks, Mr. Gladwell), and nothing worked easily anymore. I stopped being able to fall asleep without insomnia or sleep well once down. To eat without discomfort. To move without pain. To shop for clothing without great hassle. To fly on an airplane without worry about fitting in my seat. The list goes on and on.

So as I went to the doctor this morning, my recent acute symptoms to discuss, I had obesity on the brain. I prayed that I would not be too chipper---too happy-go-lucky and "I'm totally friendly and happy and okay" that I would not be able to express that I was really needing some help. I also prayed that I would not simply irrupt into tears and incoherently exclaim something like, "Please, help me, I feel like I'm slowly, painfully, shamefully dying, and I've read everything and tried everything and nothing has stuck and I can't continue on like this and PLEASE PLEASE PLEASE notice that this is a real, terrible illness that requires some personalization and finesse and support and guidance and is not simply a personal failure of my resolve or commitment and please don't just tell me that I need to eat less and exercise more and have I considered yoga because it is great for stress because I swear that I know those things and for-goodness-sake I'm studying health behavior change for my master's capstone and I still can't crack the code for myself and I know that if I had some real, medical help and some real, medical support for pennies-on-the-dollar I could turn this ship around and PLEASE PLEASE PLEASE be that person to get that process started with me because I will work as hard as I can if I have some hope that this can get better and I just must have some hope."

I wasn't too chipper, and I didn't cry. I rode down the middle, which was a major accomplishment for me, considering the gravity of the things I wanted to discuss. The doctor listened to me, and I think he earnestly tried to get the whole picture and figure out how to help. All the same, obesity didn't end up being the conversation piece it should have been---it was more like a "yes, I can see how terrible it feels to be heavy" discussion. After wrapping up the appointment and getting several vials of blood drawn by a very skilled phlebotomist (I didn't even feel the needle), I started to replay the appointment in my head, and that is when I began to get angry. I wasn't angry at the doc, per se, I was angry with the whole experience, one that I have had repeatedly throughout my adult life as my weight has gone up and up.

An endocrinologist's office is peppered on every wall and surface with advice for diabetics. "Make sure to get your prescriptions updated DURING YOUR APPOINTMENTS." "Testing supplies may be available to you at discounted rates---ask our coordinator for details." "Have you spoken to our nutritionist lately? She's here for YOU!" "'A Little Sugar' is a big deal---make sure to check your blood sugar regularly."

Diabetes is a really terrible disease. Type II diabetes occurs when insulin-resistance is developed. Obese people have out-of-whack insulin levels, and are likely to eventually become diabetic. From my view as a non-diabetic, obese patient, it is as if obesity is simply a symptom that leads to a REAL disease, not a terrible disease in and of itself. After leaving the office, I found myself asking this question: "Is that what it is going to take? Should I just drink colas (my vice), gain more weight, and become diabetic to get some disease-management help from the system? I keep gaining weight, I keep crying out for some help...do I have to let this obesity worsen into other comorbidities before I can get that help?"

Obviously, this is absurdity, but really, the complexities and dangers of the disease that I currently have should warrant posters and interventions and clinical specialists and the whole nine yards. This is an epidemic in our nation, but in my experience, the disease is treated like a medical riddle wrapped in a set of extremely bad lifestyle choices. The answer for the chronically overweight or obese is that they need to do better with their nutrition and activity, but the underlying riddle is why, chemically/psychologically/physically/emotionally, are their bodies prone to make poor choices and/or respond disproportionally to those choices, once made? No one doctor, no matter how committed to his or her patients, can solve the riddle---it is too individual and too darn hard---so well-meaning docs hammer home the importance of good lifestyle choices, despite the fact that the recidivism rate following weight loss (i.e., the rate at which people gain back all of their weight or more) is off the charts, sometimes quoted as high as 95%. That's a stat you just don't hear on Jenny Craig ads.

I believe, quite certainly, that obesity is the underlying disease that, along with my current high level of stress, is nudging my physical symptoms to the breaking point---the point that led me to get evaluations done for my health scare in the first place. I don't feel, however, that I am treated like a patient with a disease. I know, who wants to be diagnosed as ill? Why on earth would I want to claim to be diseased? It certainly would come back to bite me in terms of insurance to have a pre-exisiting, chronic condition. But you know what feels worse? Knowing that I have a serious problem, and also knowing that it is an almost impossible feat to find the help that I need to deal with it---help that would not be expensive to provide in comparison to many other diseases we treat in this country every day.

The truth is, obesity is a "big nasty"---it is, without doubt, as deadly as cancer to me, even if it isn't as fast-moving in its effect. It pains me every day, it colors all of my interactions with others (including my family), and it steadily, unrelentingly damages my body. Why the sight of me in a medical establishment does not send off warning bells and alarms and red flashing lights is truly beyond me, because I hear those bells, I feel the alarms, and I am telling the professionals I trust that I have picked up the warnings, and need help putting out the fire and escaping the burning building, so to speak.

I want to be responsible, to heal my body, to make the right choices, to live a healthy life---I'm not a victim, I don't want pity, and I'm not oblivious to the decisions that I make that contribute to my illness. I am just so tired of feeling ashamed and alone in this fight. To my mind, seeking out medical help over and over, even when it results in no change from the status quo, and even worse, does not help curb additional future damage (i.e., more weight gained, more symptoms, etc.), is the mark of someone responsible and willing to do what it takes to take care of herself.

After I got angry today, I got sad. I'm still sad. I'm writing this post, even though it is more personal than I usually blog and is more disclosing than I usually am, because I just can't imagine that I am the only one who feels this sad about this disease. Justifiable anger, when consistently unresolved, turns into deep sadness, because it makes a person stop feeling hopeful. Loss of hope, at least in my experience, doesn't make it easier to stop using coping behaviors (like eating, for example) to feel better. It is a vicious cycle, and because I can't seem to find the help I need to break it in any other way, I'm describing that cycle here, and at least putting the truth out there. It is a start.

I promise, my next post will be back to the regularly-scheduled programming: funny quotes from EJ (like two quotes from today when, responding to a driver that cut us off in traffic, she explained that her imaginary friend, Whyatt, "is always nice to jerks," and her teachers at school say, "it is not okay to cut in line!"), pictures of the kiddo in her glory at Disney World, and general adventures in juggling grad school and marriage and parenting. In the meantime, please feel free to comment on this post, even if you are usually a lurker---discussion about the "big nasties" always makes them feel smaller and more manageable.

Quotable EJ

Lately, there have too many funny and sweet things coming out of EJ's mouth to get them all documented---I catch myself making a mental note to write something she has said down during the day, but unable to exactly recount the phrase later in the evening. Her brain is on verbal overdrive, and I think that her recent reading explosion goes hand in hand with her chattiness.

Here are a few of my favorite EJ quotes from the last week, which fall into a few categories:

1) "Parentally" Revealing: Sometimes EJ says stuff that I can actual hear Mike or I saying, and the way she puts together idiomatic phrases with certain situations slays me. I occasionally wince at her catching on to an expression that, when uttered by a three-year old, seems less benign than I had originally thought. Most of the time, though, they are just funny. Here's one from the other morning, at roughly quarter past six, when she was wide awake and in our bedroom trying to wake me:

"Mommy, why in the world are you still asleep?"

Here's another, that mirrors what I tell her whenever I am disciplining her---I love her always, when she chooses good behavior AND when she chooses bad behavior:

"Mommy, I love you all the time. I love you when I am happy and when I am sad. That means love all the time."

2) Double Entendre: Let's face it, munchkins say stuff that they have no idea means anything else to adult ears. The fact that they say it with such earnestness makes it that much funnier. Take EJ at the park on Friday, in the glorious 60 degree weather, rediscovering the playground in her post-winter, taller, older body:

"Look! I'm at the bar! I'm so big now, I can be at the bar! I can swing at the bar!"

3) Mix-Ups: I find it delightful that with no prompting on my part, EJ calls spaghetti, pasketti, just like my brothers and I did when we were small. Maybe that is universal among kids, but it charms me nonetheless. Here's another quote from this week, as she asks to watch her new obsession, Super Why:

"Mommy, can you turn on Super Why for me? My favorite episode, 'It Was Twice Before Christmas,' okay?"

I'd pity Santa if he had to make that journey twice in one night. Apparently EJ is gearing up, because "Twas the Night..." is the one episode she wants to watch over and over, leaving us all with a version of "Jingle Bells" with reading lyrics running through our heads.

4) Imaginative/Creative: Here's another one about Super Why---I swear, she doesn't watch television all day, but when she is focused, she is really focused. I love this one because it shows how really creative we all start out, and how nice it is to share in that space with a little one while they are deep in imagination.

We made a switch a week ago, moving EJ out of one of my Saturday music classes into a class led by Marsha, the director of the studio. It had become apparent for about a month that EJ had entered a different stage, and having her mommy shared with all the other kids, even when Mike was attending, too, was not sitting well with her. By switching classes, I can attend with her just as a parent, and we are both really enjoying ourselves. In class on Wednesday, Marsha asked for some suggestions, and EJ started spinning. When Marsha said, "Let's spin like EJ," my daughter said this:

"Marsha, I'm not spinning. I'm transforming. I'm transforming into a super-reader so we can solve the problem and save the day."

Big Reading Love

Last night, before dinner and after a nap, we told EJ she could watch one of her favorite shows on TV. As we were scrolling around the DVR menu, trying to get to her show, Super Why, among the long list of recordings we have yet to watch, I paused for a moment on another listing. It was so brief---maybe 3 seconds---but it was noticed. We've known that she was memorizing words and sounding even more out for awhile now, but we weren't prepared for this:

EJ: "I don't want to watch Big Love. I want to watch Super Why, Mom."

My first thought was, "Okay, I don't want you watching an HBO show about a polygamist family, either, but did you just read 'Big Love' without any prompting/sounding out/hesitation?"

Wowser.

I guess I shouldn't be surprised---she has been playing a made-up game with Mike that they coined "treasure hunt" for awhile now, which involves Mike writing a series of clues on paper, taping them to items around the house, and EJ reading each clue to get to the next, until she gets a little prize of a small piece of candy or something similar. She has read clues like, "In the fridge on the homemade yogurt," for instance, even asking if the "e" in home was a silent one, then declaring, "that makes the 'o' say the 'oh' sound!" We also play a game where we write names of items on post-it notes, then she reads the post-its and places them in the right spots. Last week, with a little help sounding things out, she put post-its on "laundry basket" and "play kitchen," among others. All of that is a clue that reading the television listings wasn't far behind, but even still, there was something about her quick reading of those two words, "big" and "love," that was startling to Mike and me. It showed how much attention she is paying to everything (yikes!), and also that there are words that she absolutely knows, without any time necessary to process them. Our jaws just hit the floor.

This morning, she is home from school with a cold. She is still high energy---she is sick enough to stay home but not sick enough to really rest---so I'm indulging her with a little more television than is usual. As we scrolled through the listings this morning to pick something out, I thought it might be fun to see which titles she recognized on sight. From the guide, she read Curious George, Sid the Science Kid, Super Why, and Mickey Mouse. Add this to the number of signs she reads and/or recognizes when we are out and about, (i.e., "Momma, that sign says food!" or "This is the exit---E-X-I-T, exit."), and the amount of story book text she sounds out when we read together, and I think we can safely say,

Our kid is reading.